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A preregistered vignette experiment on determinants of health data sharing behavior: Willingness to donate sensor data, medical records, and biomarkers
Silber, Henning
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Gerdon, Frederic
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Bach, Ruben L.
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Kern, Christoph
;
Keusch, Florian
;
Kreuter, Frauke
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a-preregistered-vignette-experiment-on-determinants-of-health-data-sharing-behavior-willingness-to-donate-sensor-data-medical-records-and-biomarkers.pdf
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DOI:
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https://doi.org/10.1017/pls.2022.15
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URL:
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https://www.cambridge.org/core/journals/politics-a...
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Additional URL:
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https://www.researchgate.net/publication/363579320...
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URN:
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urn:nbn:de:bsz:180-madoc-629674
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Document Type:
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Article
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Year of publication:
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2022
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The title of a journal, publication series:
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Politics and the Life Sciences : PLS
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Volume:
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41
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Issue number:
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2
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Page range:
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161-181
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Place of publication:
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Cambridge
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Publishing house:
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Cambridge University Press
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ISSN:
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0730-9384 , 1471-5457
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Publication language:
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English
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Institution:
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Außerfakultäre Einrichtungen > Mannheim Centre for European Social Research - Research Department A
School of Social Sciences > Social Data Science and Methodology (Keusch 2022-)
School of Social Sciences > Sonstige - Fakultät für Sozialwissenschaften
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Pre-existing license:
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 Creative Commons Attribution 4.0 International (CC BY 4.0)
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Subject:
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300 Social sciences, sociology, anthropology
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Keywords (English):
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data sharing , health research , privacy attitudes . contextual integrity , cancer research , public policy
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Abstract:
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The COVID-19 pandemic has spotlighted the importance of high-quality data for empirical health research and evidence-based political decision-making. To leverage the full potential of these data, a better understanding of the determinants and conditions under which people are willing to share their health data is critical. Building on the privacy theory of contextual integrity, the privacy calculus, and previous findings regarding different data types and recipients, we argue that established social norms shape the acceptance of novel practices of data collection and use. To investigate the willingness to share health data, we conducted a preregistered vignette experiment. The scenarios experimentally varied the vignette dimensions by data type, recipient, and research purpose. While some findings contradict our hypotheses, the results indicate that all three dimensions affected respondents’ data sharing decisions. Additional analyses suggest that institutional and social trust, privacy concerns, technical affinity, altruism, age, and device ownership influence the willingness to share health data.
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 | Dieser Eintrag ist Teil der Universitätsbibliographie. |
 | Das Dokument wird vom Publikationsserver der Universitätsbibliothek Mannheim bereitgestellt. |
 Search Authors in
BASE:
Silber, Henning
;
Gerdon, Frederic
;
Bach, Ruben L.
;
Kern, Christoph
;
Keusch, Florian
;
Kreuter, Frauke
Google Scholar:
Silber, Henning
;
Gerdon, Frederic
;
Bach, Ruben L.
;
Kern, Christoph
;
Keusch, Florian
;
Kreuter, Frauke
ORCID:
Silber, Henning ; Gerdon, Frederic  ORCID: 0000-0003-4442-6698 ; Bach, Ruben L. ORCID: 0000-0001-5690-2829 ; Kern, Christoph ORCID: 0000-0001-7363-4299 ; Keusch, Florian ORCID: 0000-0003-1002-4092 ; Kreuter, Frauke ORCID: 0000-0002-7339-2645
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